Tips while on TREATMENT
with JYNARQUE® (tolvaptan)
Continuing on your treatment journey can be tough. Stay motivated and stay on track by reminding yourself that JYNARQUE is a long-term treatment. Here are a few tips and tricks to help you along the way.
MANAGING THE MOST COMMON SIDE EFFECTS
You may experience excessive thirst and frequent urination while taking JYNARQUE, but there are practical steps you can take to help you stay on track.
- Bring a water bottle with you wherever you go
- Start treatment on a non-workday or weekend
- Take the first dose upon waking; take the second dose 8 hours later. This may reduce the need to wake up at night to urinate
- Plan ahead and use a bathroom finder app to locate nearby restrooms while traveling
- Make sure to go to the bathroom before meetings, dinnertime, movies, or other social events
“The biggest side effect for me is thirst. I never go anywhere without water. There’s a good amount of restroom trips, but making sure I have that built into my day is not a deal breaker.”
ADJUSTING YOUR DIET
While taking JYNARQUE, you may need to adjust your diet to help you stay hydrated, manage the timing of your highest urine output, and avoid excessive caloric intake.
- Avoid extra salt and protein, as they may make you need to urinate more
- Stay hydrated. Water is the best choice; avoid drinks with high sugar, fat, or caffeine content
—1 teaspoon of table salt contains ~2.3 grams of sodium
- Try to reduce the amount of protein you eat to 0.8-1.0 gram per kilogram of your weight (1 kilogram is 2.2 pounds)
—For a 150-pound adult (68 kilograms) that is 54-68 grams of protein daily
—That’s similar to having:
-
2 servings
of salmon -
or 4 blocks
of firm tofu -
or 2 cups
of almonds
-
In general, each serving is about the size of a deck of cards
- Choose plant-based proteins over animal proteins when possible. These include beans, peas, lentils, nuts, nut butters, seeds, tofu, edamame, and soy milk
“I made some real positive changes. I started taking better care of myself. I lost some weight; I started eating better. My outlook has changed a great deal.”
PLANNING FOR THE DAY
The better prepared you are, the better your treatment experience.
- Set alarms on your phone to help remind yourself when to take your medication
- Create a recurring event in your calendar to remind yourself of upcoming lab tests and other appointments
—Download a lab test reminder calendar
- Use apps that can help you locate nearby restrooms while traveling
- Keep extra water bottles handy—in the office, at home, and in the car
“I do have to plan a little bit. I have to make sure I have a water bottle with me, know where bathrooms are.”
TAKING CARE OF YOURSELF
We understand that having ADPKD can be difficult on your mental health. It’s important to make time to take care of yourself during treatment.
- Being diagnosed with ADPKD can lead to feelings of grief for your “former” life. Allow yourself time to grieve and process your feelings to help you move forward
- A parent with ADPKD has a 50% chance of passing it down to their child. If your parent has or had ADPKD, remember that their story is not your story
- Find ways to stay active. Exercise is a great way to manage stress and helps lower blood pressure and improve muscle strength. Remember to stay hydrated!
- Talk to your family about your ADPKD journey
—Get the Honest Conversations Kit, a resource designed to help encourage open and honest dialogue with family members. The kit includes a doctor discussion guide, family tree activity, and conversation starters
- Connect with other ADPKD patients. Speaking with someone in your shoes may help you feel less alone. Sign up for the ADPKD Peer Mentor Program to talk with a Peer Mentor over the phone or via video call
“I’m thankful to be with my wife. We have worked together to be advocates for our healthcare. We choose to have open communication about our health, and it makes our family stronger.”
DETERMINE YOUR ELIGIBILITY FOR COPAY ASSISTANCE
SAVE
of all patients pay $10 or less per
month for JYNARQUE, regardless of coverage type*†
With JYNARQUE, there's no copay card necessary. Ask the Specialty Pharmacy to add copay savings directly to lower your out-of-pocket costs.
ADPKD=autosomal dominant polycystic kidney disease.
*Assumes one 28-day supply prescription per month. If more than one prescription is filled in a calendar month, you may pay more than $10 in that month. Offer is not transferable. Patients are not eligible if they are under 18 years of age or are covered in whole or in part by any state program or federal healthcare program, including, but not limited to, Medicare or Medicaid (including Medicaid managed care), Medigap, VA, DOD, or TRICARE. Patients must have a prescription consistent with FDA-approved product labeling for JYNARQUE. Only valid in US and Puerto Rico. Offer void where prohibited by law, taxed, or restricted. Other restrictions may apply. This program is not health insurance. Otsuka America Pharmaceutical, Inc. has the right to rescind, revoke, or amend this program at any time without notice. Your participation in this program confirms that this offer is consistent with your insurance coverage and that you will report the value received if required by your insurance provider. When you use this program, you are certifying that you understand and comply with the program rules, terms, and conditions. The information provided in this communication is provided for informational purposes and does not guarantee coverage or payment (partial or full). Actual benefits are determined by each plan’s administrator in accordance with its respective policy and procedures. Providers should consult with their payers for all relevant coverage, coding, and reimbursement requirements. It is the sole responsibility of the provider to ensure the accuracy of all claims used in seeking reimbursement. Nothing herein may be construed as an endorsement, approval, recommendation, representation, or warranty of any kind by any plan or insurer referenced. This communication is solely the responsibility of Otsuka America Pharmaceutical, Inc. This resource is not intended as legal advice or a substitute for a provider’s independent professional judgment.
†Managed Markets Insight & Technology, LLC: Analytics website as of June 21, 2022. Commercial lives exclude Health Insurance Exchanges Program (HIX) data.